On 4 June 2026, EDiHTA held a dedicated co-creation session at the Patient Engagement Open Forum 2026 in Seville, Spain. The session brought together 22 external participants, including patients and patient organisations, HTA professionals, industry representatives and healthcare professionals.
The workshop focused on how the EDiHTA framework and platform can remain relevant, useful and sustainable for patients and patient organisations. Participants shared valuable perspectives on patient involvement, patient-generated evidence, educational resources and the long-term uptake of digital health technology assessment.
Discussions highlighted the importance of continuous patient involvement, practical use cases, accessible training materials and clear pathways for patient organisations to contribute to digital health technology assessment. Participants also emphasised the need for plain-language and multilingual educational resources, including videos, webinars, FAQs, infographics and practical guidance on how patients can engage with HTA processes.
A key message from the session was that patient perspectives should remain central to the future development and sustainability of the EDiHTA framework. Participants encouraged stronger visibility of patient experience data, ongoing feedback mechanisms and collaboration with patient advocacy networks to support uptake at national and European levels.
The input collected during the workshop will directly inform EDiHTA’s ongoing work, particularly the development of educational resources and future sustainability planning.
We warmly thank all participants for their active engagement and valuable contributions. Special thanks also go to Bianca Pop and Valentina Strammiello (European Patients’ Forum), Prakash, Annapoorna (RUMC), Sonia Muñoz (IDIBAPS/HCB) and Emmanouil Tsiasiotis (UCSC). We also thank our project partner, the European Patients’ Forum (EPF), for organising the Patient Engagement Open Forum and creating this valuable opportunity for dialogue and co-creation with patients and other stakeholders.
